19 Jun Biomarin
This is a statement from RGA, LPUK, LPI, DSA, SSS:
“The associations for Little People in the UK and Ireland understand that there will always be research and new technologies developed to promote physical growth in people with dwarfism. We respect and understand that it is about individual choice. However, we emphatically encourage our members to consider that any possible long-term physiological and psychological effects of such treatments, have not yet been identified and will be unknown for years to come.
We are also concerned with the negative language used in this report:
Which does not reflect the views of little people within the UK and Ireland correctly. Thus, we would like to emphasise that people with dwarfism can and do lead fulfilled, happy, healthy, engaging and productive lives without pharmaceutical intervention”